Sometimes, an incurable disease can hit close to home, very close.
For Mauricio Decaroli, his neighbors and good friends in Prior Lake have two boys diagnosed with Cystic Fibrosis (CF,) a chronic disease that affects the lungs and digestive system. Decaroli manages Luther’s Customer Care Center in Hopkins.
The boys diagnosed, 12-year old Payton Comp and his brother, Trevon, 7, often play with Decaroli’s children, and are considered part of the family. Together with their parents, the two formed “Team Dynamite” to walk in the “Great Strides” event, raising almost $4,500 for the Cystic Fibrosis Foundation. Lake Calhoun in Minneapolis set the stage for the event with 600 to 700 people.
Both boys are undergoing treatment. “They do not stop their life, they just keep running,” explains Decaroli, who said they are handling it quite well. He was shocked by their fighting spirit. Decades ago, people with CF seldom lived to attend elementary school, but people with CF today live, on average, to their late 30s, according to the foundation.
The boys seldom show their sickness to others. Trevon enjoys the outdoors, fishing, the water and the forest, and wants to be a lifeguard, Decaroli explains.
“It was nice to support them” he said. “It’s more when it hits the young kids. It’s hard to see a kid see this type of thing with no cures.”
Learn more about Great Strides.